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Message: <blockquote data-quote="BrokenBackJack" data-source="post: 318226" data-attributes="member: 642">Update:Praise Jesus, her Brain and PET scan both came back negative.Treatment will start in 2-3 weeks as she needs another CT scan as they need to know the exact target for the Proton Radiation Treatment which is the newest/best thing out there, we were told and not many of them in the U.S.  Also said that the mass is pushing on her vocal cords and esophagus which is making her voice come and go and raspy at times, and getting harder to swallow.  Said it is close to the heart too so that is another reason this Proton thing is the way to go, as they can pinpoint that somewhat.She will also need a Port installed.They are going to be using 2 different Chemo drugs which is once per week for 6-7 weeks and at the same time do the Proton radiation daily Monday thru Friday for 6-7 weeks. So she is going to be going through quite a bit in a short period of time. We live 85-90 miles away (one way) so daily trips will be attempted, but don't know how sick she will get from the treatments and then driving home through switchbacks and mountains might be to nauseating for her.  Might have to find a place to stay that is close to the Mayo Hospital in Phoenix for the Monday-Friday treatments.  They recommended we stay down there, so will see how that goes.After these 6-7 weeks, she will wait 4-6 weeks and then some more CT scans, then if all is going well from the radiation and chemo, they will give her Durvalumab IV's treatment every 2 weeks for up to and maybe more than 12 months.I may have some of this screwed up as it was a lot to grasp in a few hours meeting with the Oncology and Radiation Doctors.  They kept saying she is very fortunate to be able to get the Proton Radiation Treatments as it is the best of the best.  Both Doctors are great and explain things well and the Radiation Doctor is a jokester and helped to lighten up the situation somewhat.  He even gave us his personal cell number and said call or text if we have questions or not feeling good or anything at all to do with this treatment.  He said i will get back to you that same day or the next day at the latest.So we are on hold until doing the Port and CT scan hopefully this next week.Will update more as we know.Appreciate all the prayers and believe they were answered with these 2 negative tests.  So keep them coming please!</blockquote>

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