I've got a boy with a ridiculously rare syndrome. But, he will likely live to see 30. I hope like hell this boy beats this. No parents should ever have to endure this hell on earth. My prayers.
This is just terrible and we feel bad for the family.
Prayers will be sent and wish him the best!
Going to send a card and put some cash in it for the youngster to buy whatever he wants!
If you can afford it, please do the same.
My wife works with Chris and Brooke was the ultrasound tech for our son. Connor is only a couple months older than our son so this hit pretty close to home.
What a great picture. I hope his wonderful Valentines Day provides him with strength. He looks very happy and healthy in this picture and I hope he sees a lot of days like this.
We could all learn/be reminded of a lot from a child like Connor and his situation.